Search Results
1087 results found-
CSL Behring is a global leader in developing and delivering high-quality medicines that treat people with rare and serious diseases.
https://www.csl.com/we-are-csl/our-businesses-and-products/csl-behring -
Which films get it right? We asked real patients and “The Big Sick” made the cut.
https://www.csl.com/we-are-csl/vita-original-stories/2018/20180302-patient-movies -
CSL Vifor patients share their stories.
https://www.csl.com/patients-public-health/nephrology/nephrology-patient-stories -
Dr. Brittany Clayborne travels the United States inspiring others to share their story. Here are the tips she offered at the National Organization for Rare Disorders (NORD) Breakthrough Summit.
https://www.csl.com/we-are-csl/vita-original-stories/2024/how-to-tell-your-patient-story -
CSL Vifor patients share their stories.
https://www.csl.com/patients-public-health/iron-deficiency/iron-deficiency-patient-stories -
The global celebration unites rare disease patients and their advocates on February 29. Find out how to show your support.
https://www.csl.com/we-are-csl/vita-original-stories/2024/how-to-show-up-for-rare-disease-day-2024 -
Vicki Modell, alongside her husband Fred, channeled grief over their son’s death into the Jeffrey Modell Foundation, which raised millions and helped a global community of patients cope with primary immunodeficiency.
https://www.csl.com/we-are-csl/vita-original-stories/2023/remembering-vicki-modell -
This February 29, we bring our collective focus to the cause and demonstrate the power of showing our stripes, says therapist and primary immune deficiency patient Jodi Taub.
https://www.csl.com/we-are-csl/vita-original-stories/2024/why-rare-disease-day-matters -
Eurordis, the European patient advocacy group, invites people around the world to take a photo that “visually expresses what it means to live with a rare disease.”
https://www.csl.com/we-are-csl/vita-original-stories/2024/rare-disease-patient-photo-contest -
Your medical journey is uniquely your own. Are you ready to share your story? Get started with this writing exercise from Pulitzer-Prize winner Michael Vitez, who now teaches doctors about the power of stories – and how to listen closely to what patients say.
https://www.csl.com/we-are-csl/vita-original-stories/2023/video-tell-your-patient-story