In honor of the upcoming World Primary Immunodeficiencies (PI) Week, CSL Behring is proud to sponsor Immune Deficiency Foundation’s new PI Voices, Young Adult Webinar Series. The program has been developed to address the unique needs of young adults living with primary immunodeficiency, a patient group that has been traditionally challenging to reach and engage.
The series consists of five live webinars covering topics ranging from career management, medical care prioritization, insurance transitions, family planning and health/social life balance. The webinars are live and offer the opportunity for participants to ask questions of panel experts and connect with other audience members who may share their experience of living with primary immunodeficiency.
"We recognize that young adulthood is a critical time for people with primary immunodeficiency. For the first time, many are taking responsibility of their own care, impacting all aspects of their life." comments Marcia Boyle, IDF President & Founder. “We are so grateful for CSL Behring’s support of our new, interactive program, giving this age group a valuable opportunity to learn how to manage these concerns.”
“A critical part of supporting PI patients is sponsoring programs like this that can connect them to experts and each other,” adds Biju Chorinchath, Senior Director US Immunology Marketing for CSL Behring. “We are driven by our promise to be a true partner to our patients throughout their journey.”
There series for young adults living with PI schedule includes:
- March 16, 2016: Managing Your Career as a Young Adult with PI
- April 20, 2016: Fitting Your Medical Care into a Busy Life
- May 18, 2016: Transitioning Off Your Parents’ Insurance
- August 24, 2016: Family Planning and PI
- September 21, 2016: Balancing Your Health and Your Social Life
The webinars are free, but registration is required. Recordings of each webinar will be available shortly after the live events. For more information, please visit: http://primaryimmune.org/young-adults/webinars/
About the Immune Deficiency Foundation
The Immune Deficiency Foundation (IDF), founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases (PI) through advocacy, education and research. There are approximately 250,000 people who are diagnosed with a PI in the U.S. These individuals often find it difficult to receive specialized healthcare, proper diagnosis and treatment. Individuals affected by PI also experience difficulties financing their healthcare, finding educational materials on the disease and locating others with whom to share their experiences. IDF helps these individuals overcome these difficulties and live a healthy and productive life. To learn more about IDF, visit www.primaryimmune.org.
About CSL Behring
CSL Behring is a global biotherapeutics leader, which is driven by its promise to save lives. Focused on serving patients’ needs by using the latest technologies, we develop and deliver innovative therapies that are used to treat coagulation disorders, primary immune deficiencies, hereditary angioedema, inherited respiratory disease, and neurological disorders. The company's products are also used in cardiac surgery, organ transplantation, burn treatment and to prevent hemolytic disease of the newborn.
CSL Behring operates one of the world's largest plasma collection networks, CSL Plasma. The parent company, CSL Limited (ASX:CSL), headquartered in Melbourne, Australia, employs more than 16,000 people with operations in more than 30 countries. For more information visit www.cslbehring.com and follow us on www.Twitter.com/CSLBehring. For more information about CSL Behring visit www.CSLBehring.com or follow us at www.Twitter.com/CSLBehring.
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